MN Girl With Cystic Fibrosis Helps Others
June 14, 2012 11:36 PM
A 5 year old Minnesota girl diagnosed with Cystic Fibrosis is determined to make a difference. She and her family have found a creative way to help other children just like her.
Tarryn Joens is just like any other child her age, she loves playing with her Barbie Dolls, and watching cartoons with her brother, Brandt. But there’s one thing about Tarryn that makes her just a little bit different than most kids her age, Tarryn was born with Cystic Fibrosis, a disorder that allows mucus to build up on her lungs.
“When she was about 4 months old, she wasn’t growing. We went to the doctor and she had only gained a pound since birth and so they started doing a couple of tests on her to find out why she wasn’t growing and gaining any weight. They did a sweat test on her and it came back positive for Cystic Fibrosis,” says Amber Joens, Tarryn’s mom.
Tarryn’s illness has forced her to live by a strict high-fat, high-salt diet. She does chest percussion therapy twice a day to help break down the mucus build-up.
But the Joens’ realize that Tarryn isn’t the only one living with Cystic Fibrosis. Each year they participate in the Great Strides Walk in Sioux Falls benefiting the Cystic Fibrosis Foundation. This year they started their own fundraiser, selling cookbooks and people all over the country have really eaten it up.
Amber says, “We’ve sold over 560 and we’ve got more coming because more people want them. Just family and friends, people that hear about it from people who already have them, they want one.”
The cookbook titled “Treking 4 Tarryn,” is compiled with many of the Joens Family recipes along with many pictures of Tarryn and her family. The cookbook was such a big hit that a second order will likely need to be made very soon, all in hopes that one day a cure may be found for Cystic Fibrosis.
All of the money raised from the cookbook sales will go to the Cystic Fibrosis Foundation. To get a copy of the cookbook you can email Amber Joens at firstname.lastname@example.org